Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015. I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process. (Follow on Google+ or on Twitter for updates at @soulpunkpixie, or sign up at the bottom of the page for email notification.)
Thursday, 10 July 2014
No.25.Topping up the smiles.
It was so lovely to escape from the farm yesterday evening, just Chris and I. I`ve never seen a proper stage play before with proper actors off the tele, we really enjoyed ourselves. We thought the walk from the car park to the theatre would be OK for Chris, it wasn`t too far, he took his walking poles for support and although he managed it, it was very slow going. I think if we went again we would have to take the wheelchair. We also found something else that is off the menu food wise, soft, chewy mints! He choked while eating one. I think anyone who has MND will know that when they choke on something, it is slightly different to how a person with a healthy swallow would choke. He`s scared me a couple of times in the past doing that. Still, I guess he can live without chewy mints. That aside though, we had a wonderful time, I think we must do that again while we still can. We can`t totally escape MND where ever we are, but it was so good to get distracted from it for a while. It certainly topped up the smiles.