Well, we think we have managed to find a new car, test driving it on Tuesday. We did look at some WAV cars, (wheelchair access vehicles), but we couldn`t bring ourselves to move on to that stage yet, they were quite old and tatty too. I think the Mobility route will be the best one for that when the time comes. We need the seats in the back more at the moment and as long as the boot will take Chris`s mobility scooter and a wheelchair, then that is what we will go for, for now. Chris wanted an automatic as one of his legs is much weaker than the other and hopefully he will be able to drive normally for longer with that type of car. I guess we`ll worry about the WAV car when the need arrives. We shall miss Tizzy (our Clio), Chris was always hoping to pass her on to Chloe in a couple of years, but that`s life I guess, Chloe`s not bothered about that. She wants her dad more than she`ll ever want a car.
There are a lot of amazing people out there dealing with MND at the moment, all brave and fighting it in their own way. There are those who are more vocal than others and that is brilliant because they give a voice to those who would rather stay in the background. There are brave people and not so brave people and that`s OK, because we are all different and sometimes being brave can be such a subtle thing anyway. I do think though, that everyone is a fighter. For some it`s about fighting to stay alive for themselves and their family, for others they want to fight this disease for themselves and for everyone else with MND, they are so fired up and angry at this bloody disease, that they go the extra mile and we all have to be very grateful for selfless people like that. Some are the tireless fundraisers who won`t give up and we just want to say thank you to those from the bottom of our hearts.
Chris is a quiet fighter, his battle at the moment is to just keep fighting to work, farming is his life and his vocation. He is determined to get out on the farm everyday (and yes farming for him is a 365 day a year job) and do what he can, even though he has cut down his hours he is still out between 6 and 8 hours a day, but fighting to get out there and provide for his family, is the most important thing for him at the moment and we are so proud that he hasn`t given up or given in, yet, to this bloody awful disease and when he does have to stop farming, we will know he has given it his bloody best shot. Up yours for now MND !!!
