No.39. Practical changes and unwanted changes.

Yesterday Chris and I decided we`d have a go, well I would anyway, at getting the mobility scooter into the Kangoo. It was important that I was able do it. It came apart easily enough, but I am only tiny, 4` 10" and the individual parts were still quite heavy to lift into the boot, so we weren`t sure that was the best option. The scooter could fit complete with the back bench seat down with room left for suitcases and maybe the wheelchair too, but we would need a ramp so after searching on line we ordered one. Hopefully that will work OK, will update you on that one. It was so much easier when boots had to fit just shopping, prams and dogs !!

It takes an awfully long time for Chris to eat a meal these days. It takes about 2hrs to eat a couple of ham rolls and two small pieces of cake. OK, a certain amount of that time is taken up with him nodding off, but the actual act of eating is slow too and quite tiring in itself. I think if he didn`t love his food so much or wasn`t  so determined, he may have given up halfway through. I guess that is another reason why people lose weight, some people must give up eating their meal because it is so tiring. He joked that when he has the peg fitted he can whip his meal in quick and then get back out to work. That`s Chris, forever having a laugh and seeing the positive.

It is quite hard for me to watch Chris get ready to go out on the farm. He has to lean against the wall to put on his overalls because he can`t balance and putting his work boots on is a slow process too. The control freak in me wants to help him, but he, quite rightly, wants to do things for himself. If he shows signs of frustration it is very subtle, I`ve yet to see him get angry over this. I`m not sure how he keeps up this positive attitude. I bought him a pair of new shoes yesterday too that have Velcro straps, now Chris is a proud man and you would have thought he had been an army man the way he keeps his good shoes so clean and shiny and I thought he would really object to these new ones, but he actually likes them, testament to how hard it is now for him to do up a pair of laces .

It is so hard watching someone you love go through this and knowing there is much worse to come doesn`t bare thinking about, it is so cruel and unfair. How can this be happening to my Chris? How the hell did this God damn awful disease ever come about? I pray that there will be a cure one day so that future generations won`t have to go through this nightmare of a disease.