Today is the start of the next round of appointments for Chris. He`s seeing the dietician for the first time today. He was referred as he was losing weight, though after increasing the calories he consumes and the energy milkshake supplements the GP prescribed, that seems to have stabilised now. Skinny hubby has put on a bit of fat, though that will never stop the muscle wasting, but it gives him a buffer I guess. It will be interesting to see what she will say and hope it`s worth the 15 mile trip to get there.
On a positive note, Chris hasn`t had any side effects from the Riluzol, which is good and we have some fundraising events planned with the family. Youngest daughter is a songwriter and she is organising a small music event with some other bands and a cousin of my husband`s is organising a fashion show. She runs a dress hire company and is hoping to book a local hotel for it. Her husband works for Lloyds Bank and they have promised to match fund all the money raised which is brilliant. Back to the positives and back to the fight, next round to us MND.
