When Chris was first diagnosed it was the worst thing ever, even though we had prepared ourselves that it might be MND. You feel sick to your stomach and lost, embarking on one never ending nightmare. The one thing I soon discovered though was that Chris wasn`t alone, that there were many others out there, other MND warriors, fighting their own battles.
I also noticed quite quickly, via social media, that there were a lot of people who had been touched by MND in some way, busily spending their weekends fundraising in any way they can. There are others who constantly raise MND awareness and are there for support.
Yesterday was one example, a group of 22 brave people swam from the Isle of Wight to the mainland along with a group of kayaker`s. They did it solely to raise money for MND in the names of many who live with MND and many who have died from it, MND warriors and MND angels.
I just want to say thank you to them and all the other people who run marathons, sky dive, do 100k walks, have cake stalls and what ever else they can think of to raise money. My husband is grateful, we are grateful, they are all unsung heroes. It is people like them that give those with MND some kind of hope as there is no government funding for research into the causes or to find a cure. Without these amazing fundraisers and those that raise MND awareness, there would be no research, there would be no searching for a cure and then we would really be lost.
THANK YOU SO MUCH !
