If I don't write a blog it means nothing has changed, it means we are getting on with our new normality. I wish it weren't so, but that's the reality of things.
Chris had an appointment come through to see the people who deal with the speech recognition technology and they have to come down from Devon to do the assessment, but it was on the same day as we are going away next week, so we have had to ask for it to be changed. Of all the days for it to be on and it had to be then, so typical. It is quite hard to plan things sometimes with so many appointments all of the time. Chris's sister is treating to us to two nights away next week at a lovely hotel by the sea, it will be sandwiched between a flu jab appointment and a visit to the neurologist. At least we have a breather for the rest of this next week.
Chris is getting used to his night feeds via the enteral pump. I know that the tube needs to be well flushed after to clear the feed residue, but the Y attachment where the syringe attaches seems to get bunged up most days, so needs to be removed, I then find flushing it through with a syringe of hot water under pressure seems to clear it. No way am I going to do that while it is still attached to Chris. I've also been told to make up a pint of warm water with one teaspoon of bicarbonate of soda and flush it though with a syringe of that, I've not actually tried that yet.
It was nice to have our eldest daughter back home form holiday. Sharing her excitement of her tales and seeing her photos was a welcome distraction and a taste of 'normal' normality. I personally need that.
So, another day begins, let's hope it is another boring one, boring can be quite a relief.
