Chris and I had a malt whisky last night, we were celebrating. He had a respiratory check up yesterday and his results were the same as last time, as far as his chest muscles are concerned, things have not progressed. It made up for the hanging around for ages. It was a small thing, but worth celebrating we thought. That's the one part of his body that we would like to hold off deteriorating the most.... not being able to breathe, well that seems really scary.
The speech therapist phoned to check up on Chris and she is going to wait for a couple weeks to make an appointment. Phew, that's a relief, no more appointments for a bit please. The pump is supposed to be arriving today, the nurse who does the training will be coming back to do a refresher with us on Friday before Chris starts the feeds at night.
We did have a giggle last night though, at the end of the day Chris's speech gets really slurry, (even without a malt) and the pitch is raised quite a bit too. I kept trying to think who he reminded me of and then it came to me. He sounded like 'Grandad' off of 'Only fools and horses'! We both found that quite funny. You have to laugh at this damn disease sometimes.
