Yesterday I was well and truly in 'plonker' mode, which happens quite often I might add. The PEG nurse popped in to see Chris around 3pm, which was fine because his GP appointment wasn't until 4.20pm. When we got to the Health Centre they told me that Chris's appointment was at 14.20pm not 4.20pm, so we were two hours late! My fault of course. Luckily his GP was still there and she agreed to see him then which was lucky. We had to pick up Chris's prescriptions too, which included loads of Resource milk shakes. I usually take a couple of bags to carry them. We were told that the PEG feed would be delivered to our home, but they had dropped them at the surgery, so I had two boxes of those to take too. On the way to the car, one of the bags ripped apart and milk shakes went rolling around the car park. Chris's GP had just come out and she came over to help. I felt such an idiot, but, It was very nice of her to help. One of the receptionists helped to carry out the feed boxes.
It has been Chris's job for years to be the auctioneer at the Church harvest auction. Someone else had to take that on now, but Chris still wanted to go, so I went down with him. They laid on a lovely spread, but Chris ate very little. It's quite obvious now that he is eating far less than he ever used to. I think these night PEG feeds have arrived at right time. Chris used to have one almighty appetite for a skinny bloke, not anymore, thanks for taking that pleasure away from him MND.
We had fun anyway though and I managed to stop Chris bidding for a marrow (a long running joke in our family). I managed to successfully bid for a nice hamper of fruit which was much more up my street. Chris said he didn't mind too much not being the auctioneer anymore and I believed him. He seemed to enjoy himself too.
Today Chris has to see the Respiratory consultant at Treliske. He isn't looking forward to that as the nurse had trouble getting the needle in the artery in his wrist last time and it was quite painful for him. Hopefully the results will be good. They are to check the O2 and CO2 levels in his blood. Breathing problems develop eventually because the muscles around the chest become weaker and the lungs aren't able to get rid of the CO2 properly. Chris doesn't seem to be having any problems there at the moment thankfully.
Yet another day in this MND world of horror.
