There was a good crowd of over 60 who turned up. They are looking for a new chairman as the previous one resigned over differences with head office. From what was said he will be sorely missed and it is always a shame when 'politics' gets in the way of people who have tirelessly volunteered to do the job out of there own free will. Without volunteers where would any charity be?
Janet Eathorne from BBC Radio Cornwall entertained everyone with her funny yarns of bygone days and sung some songs A Capella with her husband Laurel. We then had a pasty and a cup of tea, well we are in Cornwall. They were quite small so I gave mine to Chris, not quite diet fare. He did almost choke a little, but he was determined to get them down as he was so hungry by then.
So many lovely people came up to us and chatted and said they were there if ever we needed them, they were all so very kind. They reiterated that the Cornish branch was there to help those Cornish with MND in any way they could and that was reassuring. Another part of our MND family.
The second night of pump feeding went fine, though Chris is still sleeping restlessly, hopefully he will get used to it. I turned the alarm volume down, so not quite such a rude awakening this morning.
The next thing now is the fashion show tonight, we are so very grateful to Ursie and Jackie for organising it, fingers crossed it goes well.
The irony of this disease is that we have met so many wonderful people whom we would never have otherwise met. It is a strange old world.
