Chris started Riluzol today, hope he doesn`t get any side affects like dizziness. Still being able to drive a tractor is keeping his head above water. The physio phoned and said the OT would get in touch about the shower seat and come out and do an assessment next week. He`s got to see the speech therapist and dietician next week too. So many appointments, but at least we can`t complain about the support from the NHS, it`s been brilliant so far.
Chris had a visitor this afternoon who stayed about an hour. He was quite exhausted when the visitor left, he could hardly talk. You forget that the tongue is a muscle too and I guess it gets tired like the rest of his body. Just thought a silly thought, I`m not looking forward to the day he can`t tell me he loves me anymore, let alone not be able to talk at all. He tells me all the time. It`s too much to bare some times thinking what this disease will do to him. Got to keep fighting though and never give up.
