14/6/14
It has been a while since I wrote that last post. Life has been chaotic.Chris has seen his MND nurse who came down from Plymouth, she was lovely, a physio came home to see him and they will come once a month, he`s seen the speech therapist, the consultant again, the GP again, now he`s waiting to see a dietician and the respiratory doctor. Life has been a little crazy. We have also got our Lasting Power of Attorneys done and wills updated, boring, but necessary stuff.
The family have united to get the farm sorted so that it can still be run with Chris not being able to do as much. Everyone has been very kind, but they always greet you with `I`m so very sorry`, which reiterates the fact that this bloody disease that has chosen my husband , is terminal ,with no cure and then they don`t know what to say and I say there is nothing to say. Chris and I have cried a lot, and the sad irony is that we spend more time together now, something I always wanted, but not this way. We still laugh a lot too, which we have to do. Can`t let bloody MND have all it`s own way.
We took a trip up to see our daughter a week after diagnosis. She is at uni, a long way from home and we needed to see her and her us. We spent a lot of time cuddling in the hotel room as well as venturing out with Chris in a wheelchair. He can only walk short distances , so we borrowed a wheelchair for him. That was quite the learning curve for all of us.
A trip to the GP was also in order as Chris was very low in mood and blaming himself, that he must have done something to get it, which of course was rubbish, no one knows the cause. The GP put him on a low dose of antidepressants . She also weighed him and worryingly, my skinny Hubby had lost 4lb since February so energy milkshakes were prescribed, plus a higher calorie diet for this man who eats pretty well anyway. Sometimes I think this is all a bad dream and why did MND pick my darling husband, a sweet , kind soul? but why should it pick anybody? Like he said to me, he wouldn` t wish it on his worst enemy.
