Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015. I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process. (Follow on Google+ or on Twitter for updates at @soulpunkpixie, or sign up at the bottom of the page for email notification.)
Thursday, 26 June 2014
No.7.Being normal
Chris came in at the end of the day yesterday beaming, he`d been out more hours than he should and his speech was dreadful, a sure sign he had done too much , even if it was just tractor work, but the thing is he was happy. Who am I to say he shouldn`t do it ? His future is going to be very different and sometimes living for today, doesn`t necessarily mean fulfilling buckets lists or travel to far flung places, it means living each day as you did, before MND cast it`s shadow over our lives, just doing the normal stuff and sticking two fingers up to it. I know there are a lot of brave people out there fighting this disease and I`m adding Hubby that list.