The Ice Bucket Challenge of 2014 was a phenomenon for sure, over $220 million dollars was raised world wide. To those who felt it was a waste of time, believe me it wasn't. That money is funding vital research into a cure, research that was unaffordable till last year. It gave those with MND hope, something tangible to hold onto.
I guess it was a little optimistic to think that it would take off again as it did last year and I know many did it without having a clue as to why, but for one month in 2014, MND/ALS was heard of, was understood, millions of pounds was raised, £7 million here in the UK alone.
In the U.S they have vowed to do the IBC every August until there is a cure, but with out something else as extraordinary as what happened last year, I fear the ICB will be going for many, many years yet and there will be many more people still losing their lives to this most vile and cruel of diseases.
Last years IBC was a viral phenomenum, but like many viruses, they mutate and lose there potency. I wish many more would do the challenge this year and I think the bad weather we have had hasn't helped, but it would have given us hope again to see it take off like it did.
There is not a bottomless pot to fund research and that IBC money will run out.
Meanwhile I watch my husband die a little more everyday, he can no longer eat, drink, walk and can barely talk, but the scariest of all is his chest muscles are failing and watching him gasp for breath, well that is too much to bare at times.
It you would like to donate anyway, please text ICED55 then the amount, eg £5 to 70070.
Thanks for reading.
