Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015.
I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process.
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Tuesday, 18 August 2015
No. 234. 'Never enough.'
I find the nights so scary now, listening to Chris struggle with his breathing. A few times last night he woke me to stick more pillows behind him as he couldn't breathe.
His DNR came yesterday, the reason given was MND with progressive pulmonary failure, it hit home seeing it in writing. It makes me so scared.
I feel so helpless, everyone is doing all they can, but it will never be enough.
