Motor Neurone Disease, fighting it together.

Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015. I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process. (Follow on Google+ or on Twitter for updates at @soulpunkpixie, or sign up at the bottom of the page for email notification.)

Monday, 13 July 2015

No. 209. 'Not so good.'

My poor boy is not so good today. This mucous problem in his throat is ongoing and is pretty miserable for him. He still hasn't been able to use the NIV because of it and his breathing sounds a little worse. I am going to give the GP a call this morning to see if they will come out. The physio happens to be coming this morning so we wil see what she says too.

I think he might be getting a pressure sore on his foot so I will call them today too.

I am quite scared to be honest.