I got in touch with Jon from Plymouth and he felt Chris could really do with a cough assist machine and could collect one this week. I also rang the GP and he came out earlier. This doctor was lovely and very understanding. He felt that a cough assist machine would be a really good idea, but he also felt the Mucodyne might be working too well and suggested lowering the dose. Chris has had a really runny nose and that is probably because of the medication. The doctor has prescribed some drops to help dry the nose up and he also has some medication to help with the nausea Chris has been feeling recently.
Chris has also been getting a sore heel on one foot in bed, so the district nurse is coming out tomorrow to check that he isn't developing a pressure sore. He is getting on well with the Convene sheaths to help with his toileting, so a proper delivery will arrive tomorrow. They have proved a God send with him feeling so exhausted.
Looks like another trip to Plymouth this week then, it will be worth it, just wish it wasn't so far away and taking nearly 3/4 tank of petrol to get there and back. Wake up the powers that be in Cornwall, there may be only 50 people on average ,down here with MND, but they all deserve access to the right equipment too and preferably from our own central hospital in Truro.
Chris remarked that he was a right miserable bugger, I think not, he could never be a miserable bugger, the right to feel miserable?.....abso-bloody-lutley, be a miserable person?....never.
Chris remarked that he was a right miserable bugger, I think not, he could never be a miserable bugger, the right to feel miserable?.....abso-bloody-lutley, be a miserable person?....never.
