I had been trying to unclip the PEG button for a couple of days (I think that's what you call it), but it was really stiff and I was a little scared of hurting Chris, but I tried again yesterday and managed to undo it, so we did the first 'plunge and rotate.' The reason for doing this is to stop the back stopper of the PEG which is against the lining of the stomach, growing into the stomach itself. Hope that makes sense.
When the PEG button is unclipped you have to clean it well, move it up the tube, push the tube back into the stomach a teeny bit, rotate the tube and then pull it out till there is resistance and then put the clip back to where it was. We also had to change the end where the syringe attaches as the nozzle clip wouldn't attach anymore and I managed to change that as well. The DN said they don't last very long and Chris was given a few spare ones just in case.
The dietitian is supposed to be calling today to arrange delivery of the PEG pump and feed. Hopefully that will arrive next week as we are off again for 3 days on Wednesday as we have to take Chloe back to Brighton.
Chris was happier yesterday, he went out on to the farm on his scooter, that's always guaranteed to make him smile.
