Motor Neurone Disease, fighting it together.

Hello, my name is Lesley Roberts and my husband Christopher, who was a farmer, was diagnosed with MND on May 5th 2014, sadly he lost his courageous fight with this awful disease on September 5th 2015. I wrote this blog to ,share our journey as a family with this disease, the good days and the the bad days and hope to raise awareness of MND in the process. (Follow on Google+ or on Twitter for updates at @soulpunkpixie, or sign up at the bottom of the page for email notification.)

Monday, 9 March 2015

No. 160. Grrrr!!!

Grrrr, I am so angry and p****d at this disease. Seeing it slowly take a little bit more of Chris everyday... I just hate it. His speech was worse today, I hope it's just a blip, he has been very unsteady too, more so than he has been. MND is like a lava flow, there is nothing you can do to stop it.

I've told him he is not allowed to die on me, not for years, I won't have it, he has to stay here with me. I wish we could hide from it, take cover, fight back...do something. Chris still smiles, but I know it is getting him down, of course it is...damn you MND!!!

I am so angry too that so many many MND warriors have been taken this month. It has been such a sad couple of weeks. Yet another member of our MND family, who I have gotten to know a little, has lost his life, five so far in March alone. It just brings home how evil this disease is.

Why Chris? Why us? Why anyone? Why this God damn awful disease? Why is there no cure ? Why???

I HATE IT SO MUCH !!!!!