Because Chris struggles with eating sometimes from the point of view of what to eat and how long it takes, the dietician is going to replace one meal with a bolus (small bottle) of feed which I can put down his PEG at lunch time and then he can have a little bit of what he fancies such as yoghurt or ice cream as well if he wants. He will still have his ReadyBrek at breakfast and his pureed main meal for now. It is quite a mathematical process for the dietician to work out Chris's daily calorie and fluid intake. One blessing is that these boluses will be delivered here now along with the night feeds, rather than me having to cart large trays of milk shakes from the GP surgery eight miles away. The night feeds will be changed from 500 calorie feeds to 750 calories so that the daily bolus won't need to be so big. I think it will take about 10 minutes to put the bolus down the PEG tube.
I hate how we have just gotten used to all of this as if it has always been this way, I suppose it is just as well though I wish it weren't so. It is still strange though to think of Chris and the enormous meals he used to have, to how he eats now. Eating used to be a joy to him, now it is mostly a chore. Yet another of life's basic pleasures MND slowly steals.
