The palliative care nurse came to see Chris yesterday and she is very good at getting Chris to open up. He is fedup, angry and scared, which is perfectly understandable. He doesn't want to think about the future and what it holds for him and that's fine if that is how he copes, God knows dealing with things day by day is bad enough, he doesn't need to look forward farther than tomorrow if he doesn't need to. I don't know how anyone coping with this disease deals with it really, it is bad enough watching it happen, let alone living with it.
I hate this disease and what it has done to us, but we are doing our best to deal with it one day at a time. We have booked a trip to the theatre in January to see 'Saturday Night Fever', the Hall for Cornwall has good disabled access so we have something good to look forward to in the new year. Planning to make good memories, that's what we will concentrate on while we can.